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Aina Nadirah, a special baby, with Hydrocephalus and Hydrolethalus, passed away on March 25, 2005, at aged of 5 months and 2 days. Born at Beith Israel Hospital, Boston and Was treated at Boston Children's Hospital, Boston, Massachusetts. This is her story.
About Myself
- Name: Aina Nadirah binti Mohamed Nazlen
- Age: 5 months 2 days ... always
- Date of Birth: October 22, 2004
- Hospital: Beth Israel Deaconess Medical Center, Boston
- My mom's doctor: Dr. Nadra Samaha
Hydrocephalus
Hydrocephalus is an abnormal expansion of cavities (ventricles) within the brain that is caused by the accumulation of cerebrospinal fluid. Hydrocephalus comes from two Greek words: hydros means water and cephalus means head.
There are two main varieties of hydrocephalus: congenital and acquired. An obstruction of the cerebral aqueduct (aqueductal stenosis) is the most frequent cause of congenital hydrocephalus. Acquired hydrocephalus may result from spina bifida, intraventricular hemorrhage, meningitis, head trauma, tumors, and cysts.
Hydrolethalus syndrome
Hydrolethalus syndrome is a condition that causes improper fetal development. Multiple malformations along the body's midline, such as heart and brain defects, a cleft lip or palate, an abnormally shaped nose or jaw, and incomplete lung development result from this syndrome. The birth defects are typically extreme enough to cause stillbirth or death within a few days of birth. A less common name for hydrolethalus syndrome is Salonen-Herva-Norio syndrome, after the Finnish researchers who first described it in 1981.
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